I
wasn’t sure if I was going to talk about this at all in my blog since it was a
very personal struggle, but I decided that I really can’t be open and share my
experiences without talking about it. Also, thank you to my parents for all of
the time, energy, emotion, money, etc. that you spent in helping me stay on my feet,
chase my dreams, and become a stronger person. So, here goes:
During
a Memorial Day weekend soccer tournament in 2005 at the age of 15, I felt a
shooting pain in my heel at the end of our second game as we were walking off
the field. I never imagined that this was going to completely change the course
of my life. After going to a pediatrician, I was told that I had Achilles
tendinitis and that I had to take it easy for a couple weeks. The pain never
went away, so I was sent to a podiatrist and put in a walking boot. I missed
state ODP tryouts (Olympic Development Program). Still no relief. Next was a
cast and crutches.
Throughout
the next year, the pain worsened. I missed out on my favorite sport. I missed
spending time with my friends. I missed a lot of school. I felt guilty for
abandoning my team without a goalkeeper as I was sidelined with pain, but didn’t
know why. I was sent from podiatrist to orthopedist to rheumatologist and back.
It eventually progressed to the point that I could not wear socks or shoes
without pain. I could not tolerate anything touching my foot or ankle. I would
scream in pain any time I tried to ice it. It felt like someone twisting a hot
poker around my foot. I had muscle spasms. My foot and ankle turned blue and
red.
Almost
a year after the initial injury, I was diagnosed with Reflex Sympathetic
Dystrophy (RSD), although now it is more commonly known as Complex Regional
Pain Syndrome (CRPS). As the name indicates, there is no simple way to describe
the disease. If you want to learn more about the actual condition, I encourage
you to Google or just ask me later. This post would go on forever if I tried to
describe it all here.
I
spent my junior and senior years of high school going to physical therapy at
6:00 in the morning so I wouldn’t miss too much school and could try to control
the pain and maintain function enough to go to soccer practice after school. Oftentimes
I would just skip school after physical therapy because it was too painful and
distracting to go to class. Since a lot of people didn’t understand what was
going on, it felt as if I lost a lot of friends. This was also around the time
that Paula Abdul admitted that she had RSD and seemed to receive a lot of
negative attention for telling people about the pain that she experienced on a
daily basis. Eventually, my rheumatologist wanted to make sure there were no
underlying orthopedic issues going on, so he sent me back to an orthopedist who
did find a tarsal coalition. Although risky with RSD, we were desperate for any
potential for relief and decided to have the coalition excised after my senior
soccer season. The pain continued for a few years, but I think that this was
ultimately the right decision to prevent any future damage.
By
the time I got to college, I decided to not mention having RSD to very many
people so I wouldn’t feel alienated and broken, although there were many days
when I just wanted to hide in a corner and cry. I didn’t want to let this
define me.
One
of the most difficult parts of dealing with RSD was maintaining and developing
my identity. There were times when I wondered what I was if I couldn’t be an
athlete. But honestly, that wasn’t an option for me. I love sports. I love
working out. This wasn’t going to stop me. I kept playing soccer competitively
and on my high school varsity team. I did a few sprint distance triathlons here
and there over the next few years to try to keep being active, and when my
soccer career came to an end (that’s a different story entirely), I increased
my triathlon distances.
I
am an athlete. I am an Ironman. Nothing is going to stop me.
Kelsey, this actually hurt to read. I can't believe so many people turned on you during such a hard time, physically and mentally. I also cannot believe how incredibly motivated you were/are- physical therapy at 6am? Your description of the pain in your foot and ankle is great.... really, really horrible, but a great description.
ReplyDeleteAs you said at the top, it must have been difficult to write about such an intensely painful experience, but I'm glad you did. You are far stronger than the average athlete who has been blessed with great health! Thanks for sharing your story. Also, I agree with you- nothing will stop you <3
Does the exercise help to alleviate the pain?
ReplyDeleteI believe in the long run it made a huge difference. From my understanding of RSD, the worst thing for it is being sedentary as it can cause atrophy and limited of use of the affected area. Being active helps keep it from getting worse and/or spreading. It is very difficult to be motivated to exercise while in pain, though. That's why it was so helpful to me to have a sport where I could set and reach goals. I have not had any RSD pain for about 3 years, so it was definitely worth it!
DeleteAwesome story of fighting on! My doc told me to take it easy least summer during a flare up of colitis 3 days before a half marathon. I took that as a challenge and got a PR for the course. You are a much stronger and capable athlete and are inspiring.
ReplyDelete